Jun 20, 20222 minIt's lonely being busyAs I reflect on another busy week and weekend of work, gym, family time, volunteering work and additional, unpaid side-projects, I sit...
May 11, 20217 minI am Not OK with this rollercoaster. I'd love an average day.I cried today – in public and when I say in public, I mean in the school playground picking up Ben from school. Why the fuck am I crying?...
Jun 16, 20204 minGetting by in Isolation - The Ramblings of a Duchenne DadAs I sit here on day 92 of lockdown, I feel the need to put the proverbial 'pen to paper'. What do I really want to say? What message do...
Jan 5, 20181 minOur New Duchenne FamilyFollowing diagnosis, both my wife and I dealt with the news in our own way. There was one thing we had in common, it's a grieving...