It's lonely being busy
As I reflect on another busy week and weekend of work, gym, family time, volunteering work and additional, unpaid side-projects, I sit...
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- May 11, 2021
- 7 min
I am Not OK with this rollercoaster. I'd love an average day.
I cried today – in public and when I say in public, I mean in the school playground picking up Ben from school. Why the fuck am I crying?...
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- Jun 16, 2020
- 4 min
Getting by in Isolation - The Ramblings of a Duchenne Dad
As I sit here on day 92 of lockdown, I feel the need to put the proverbial 'pen to paper'. What do I really want to say? What message do...
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- Jan 5, 2018
- 1 min
Our New Duchenne Family
Following diagnosis, both my wife and I dealt with the news in our own way. There was one thing we had in common, it's a grieving...
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- Sep 29, 2017
- 1 min
The Beginning
in August 2017, Ben was referred to a Paediatrician due to his propensity for falling over and hitting his head. Little did we know that...
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