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Coping… Or Not: Life as a Duchenne Dad
People often ask, “How do you cope?” The truth is, I don’t always. Coping isn’t a steady state, it’s a façade, a performance, a brave...
Oct 53 min read


Fighting for Ben: The Cruel Reality of Delays – Time is Muscle
Every morning, I watch my son, Ben, pull himself up to stand. At 11 years old, we are lucky he still manages, but I see the effort it...
Mar 122 min read


It's lonely being busy
As I reflect on another busy week and weekend of work, gym, family time, volunteering work and additional, unpaid side-projects, I sit...
Jun 20, 20222 min read


I am Not OK with this rollercoaster. I'd love an average day.
I cried today – in public and when I say in public, I mean in the school playground picking up Ben from school. Why the fuck am I crying?...
May 11, 20217 min read
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